Real patients. Real thoughts. No BS.
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ON TRACKING SYMPTOMS AND MEDICATION
“I have been tracking in google docs from my phone ever since this started 6 months ago, no one has ever asked me for it but for me it’s a great way to see how far I’ve come” –DizzyMomma
“I kept a paper journal for years after I was finally diagnosed. It helped me identify my triggers. Now I use @MigraineBuddy to keep track of everything. It’s great.” –Kristin
ON HEADACHE SPECIALIST VISITS
“Keep track of attacks and get to know your family history of #headache. Also find the words to describe your symptoms. What is it you feel?” –Bridget Walker
“Keep a list of everything you have tried, including dosages of medications, and bring it to your first appointment.” –Krista Furgerson
“I’ve got a spreadsheet of every med and treatment I’ve tried, when, and what the results were. That’s in my records as well, but a neuro asked me to pull it together for ease of reference a while back, and it’s useful to be able to hand new doctors.” Rebecca
“Expect the worst but hope for the best. Some HAS have a horrible bedside manner. They might not be nice.” –Sarina Hoskins
ON WHAT WE WISH PEOPLE KNEW ABOUT CHRONIC MIGRAINE
“They don’t realize how debilitating they truly are. When I have a migraine, my world stops” –Lyndsey
“Kids get migraines too!!” Emily Waldman